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Angi chocolateEdinburgh and eastern correspondents
Chris PhotographyKobi Crolla is not 18 months old but he has spent almost his entire life in the hospital as a medicor for severe brain damage.
At that time he had suffered from seizures and 17 operations, while his parents had given him a job to care for.
Now asisang Kirsty Grandis, 35, is an experience on Tiktok in an offer to help parents of children in the hospital from the hospital.
“We used to feel like we were the only moms going through this,” she said
“There is no one online to make videos where we can look for advice, so I started making videos to show life in the hospital in helping other people.”
His Tiktoko page has 34,000 followers and receives up to 40 personal messages a day.
Chris PhotographyKobi was born 10 weeks early at the Royal Hospital for Children and Young Children in Edinburgh on July 17.
Although he weighs 3LB 3LB, his parents at first thought he was too.
However, that night the Doctor “came to eat” in his hospital room in Edinburgya as Camping Signal had collapsed and he had breathed.
Then K dinsty, 35, and his partner Daniel Crolla, 38, received the news “that changed everything” that they rested in the fourth grade, nothing serious.
They told him he had no quality of life and they should prepare for the worst and call the family to tell the owner.
Against all odds pulled by eight “carriages after” days later, they finally got their first son’s cuddir, which was damaged like “Kuajaat like”.
But the parents of Ngikjeung “Berta dibera” by Kobi developed meningitis and every day life is a new fear with blood transfusions and blood transfusions.
Chris Photography“He has up to 10 solizur a day. We are always picky, always afraid for him.” “” said Kirsty.
Kobi was diagnosed with Hydrocephalus which caused a dangerous buildup in the brain.
Sung’s choice was the main surgery, installing a tube to allow fluid to drain from the brain – since then, Kobi has been 16 Burgers for a long time.
“Those 16 times we really put him off, not knowing if he was going to come,” Kirsty said.
Norara Daniel, a bus driver, and Kirsty, a gardener, have turned their jobs into full-time nursing.
And kirsty is her Tiktoko page – brave kobi – giving followers the reality of life in a sick children’s unit.
He showed everywhere that sarong in particular-Sahin for walking locks-then, how to clean his fellum, showed them kobi plane.
“I was looking for a message from another parent in nononalatis the video I found and how it did it was not noticed the hope because he has not been from Kobi since he was sent.
“I want to take all these followers on this journey as I know how much they help.”
Chris PhotographyKirsty says caring for coffee is “the world’s greatest judge” but it’s freeing, nothing to do with lonely travel.
She plans to continue Kobi’s story in a bid to help other parents know there are others going through the same experience.
“We don’t remember the last time we felt at home, content,” says Kirsty.
“We used to have our little bits outside of all this – football, gym. Now, we go days without showering.” Hope you,”
Kirsty and her two children from a previous relationship live in Presttonpans, lrotib, with Daniel, who has three children.
They took it to stay in the hospital using coffee day and night.
“We’ve lived our lives we thought we had with coffee,” said Kirsty.
“It’s hard not to feel jealous sometimes. You see people worried about handprints on the walls or killing everyone on the floor. We’ve been given nothing normal.”
Now the family is there I hope they can have their “cheeyy and determined” coffee at home with them during the Machine, Roindiit and the clinical smell and the clinical smell-characteristics of the hospital.
“We will be on edge and think about what went wrong,” said Daniel
“His head could actually double and we had to rush him to the hospital, you could see all the veins in his head and it was like a balloon.
“It was very traumatic and we were constantly in fight or flight mode.
“But when the fear is felt, the smile attracts us.
“As a family, we can count on one hand on the few days we’ve been out.
“That’s what we want – more time, more opportunities to make memories.”
Families helped with hospital costs in hospital by the edinburh strates charity.
Chris PhotographyGipa Johnston, Deputy Daily Executive Director Striminburn ‘amertra hospital, said Daniel and Kirsty and Kirsty has been shown “And the blood and the catero is not overwhelmed with such disobedience”.
“While many people will be at home to become more and more necessary, the reality is that many children, and their cults, will spend their lives in the greenhouse,” he said.
“No one should feel like being in hospital alone, especially at Christmas.
“Together with our friends at the NHS, we will be there to bring reassurance, comfort and moments of unexpected joy when they need it.”